It's been such a busy summer. L is doing OT, C is finishing softball, O is in PT, and all are doing summer camp at grandparents house, swimming lessons, and some other fun mixed in.
L saw her neurologist on Monday for her 6 month appointment. She's staying stable on her medicine for her seizures. I asked her neuro about her leg pain, since that seems to be increasing. Her lab reports showed her lactic acid being high, which is part of her disease. He said that if we increase her CoQ10, that will help her get rid of the lactic acid, in turn, hopefully helping her leg pain. So she's on that twice a day now. We're noticing that she does not want to eat when she's in pain. So we're doing protein shakes and things she can drink in order to help her on those days.
We have enjoyed some fun things so far this summer. C's softball team finished their tournament in 2nd place. We are so proud of them. L and C went to Japanese camp at their grandparents and O went to reading camp there. They had a great time and learned a lot. We took a day trip to the beach 4th of July weekend which was a blast. O is taking swimming lessons and learning a lot. We're inside quite a bit due to some extensive car repairs on my car and also the heat. It's been a great summer so far.
The rest of the summer will be full of VBS at the kids grandparents house, swimming, fun with friends, and getting ready to start the new school year. I've been busy setting up our school room. I hope to get lesson plans done next week and finish getting their curriculum. I am excited about this next year. I can't believe we'll have a 3rd, 5th, and 7th grader.
I'll try and put some photos up soon of our summer adventures. They are on my phone so I'll have to figure out how to get them on here.
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